There's more to living with HPP than taking care of symptoms


Resources for people with HPP, caregivers, and people who think they may have HPP.

HPP Advocacy Groups around the world

  • Hypophosphatasie Deutschland

    Written in German. Helps patients, families, and caregivers living with HPP better understand the illness.

  • Hypophosphatasie Europe

    Written in French. Offers information about HPP, including patient stories, patient rights, and research in Europe.

Rare Disease Organisations

  • National Organization for Rare Disorders (NORD)

    Provides education, advocacy, research, and patient services for people with rare diseases and the organisations that serve them.

  • Rare Diseases Europe (EURORDIS)

    An alliance representing over 600 rare disease patient organisations in 58 countries. EURORDIS is committed to empowering patient groups and raising awareness of rare diseases.

  • Orphanet

    A reference portal for information on rare diseases and orphan drugs. Orphanet is available in English, French, Spanish, German, Italian, Portuguese, and Dutch.